Cystic Fibrosis - 65 Roses

Parents of kids who have Cystic Fibrosis have a unique relationship.  These videos are of Joel who I think is a couple of years older than Paige and his sister Jeslyn.

http://www.onetruemedia.com/shared?p=c1fe693e9e5520f9b2843b&skin_id=1603&utm_source=otm&utm_medium=text_url


http://www.onetruemedia.com/shared?p=bd05263101311edb1e8ee7&skin_id=1604&utm_source=otm&utm_medium=text_url

Beth met Leelee (their mum) in PMH.  Leelee is a real fighter and stands up for what she believes in.  Jeslyn is a true angel who you can see loves her brother without reservation.  I wonder if she'll be a nurse when she's older.

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The following link is a movie that Steve made.  The baby is Sienna and the bits and pieces that Paige are putting together were donated by LJ Hooker, Mandurah.  It's a special nebuliser which cost a fortune and takes a very short time to dispense the medication.  She's using a traditional nebuliser in the movie.

http://www.youtube.com/watch?v=lBOj5zyN768

Doing some physio by blowing up balloons.


Steve and I had the back of the caravan covered in the hope that when we're on the road people will check out the website and learn more about this chronic disease which is the most common genetic disease affecting children.

When we're travelling and pull in for fuel we try to take a photo of the caravan with the name of where we are in the photo.  I don't know why we started doing this, possibly so that the CF. Association know that we are indeed spreading the word.